The unpredictability of MS affects the caregiver in a way unlike other chronic diseases. Caregivers are unable to predict the onset of a relapse, the progression of the disease, or even the functional ability of the patient over the course of a day. Not only do physical symptoms of the patient increase caregiver burden, but the psychological and emotional aspects of MS also present challenges for patients and family members.

Profound fatigue, sensory symptoms, and vision loss are common among MS patients. The most difficult invisible symptom for the caregiver to understand is fatigue. MS-related fatigue is very different from regular fatigue because it generally occurs daily and can occur in the morning despite a good night's sleep. It can worsen during the day and is likely to interfere with normal activities. The invisible and unpredictable nature of fatigue can make it difficult for the caregiver to understand and appreciate its intensity.
Caring for the individual with MS causes unique challenges for the caregiver. Because MS develops in young adulthood, the initial impact can begin during the years of college education, marriage, career development, and family life.

To be the best caregiver you can be for someone living with MS, it's important to be more than just sympathetic — you also have to understand the disease, how it progresses, and what your loved one might need from you over time.

• Create a Safe Environment: Some simple home adjustments can make a big difference in the safety of a loved one who's living with multiple sclerosis. Find out about common home hazards, as well as steps you can take to make your home more comfortable and easy to live in.
• Handling an MS Diagnosis: It's difficult to know how to help your loved one cope with an MS diagnosis, especially as you're dealing with your own emotions about the news. These strategies can help you put the diagnosis in perspective and together figure out ways to move forward.
• Managing Medical Tests: Throughout the course of your loved one's MS treatment, a variety of medical tests will be required to check on the status of the disease, as well as to see how well your loved one is responding to treatment. As a caregiver, you may need to assist with common MS tests.

As your loved one's multiple sclerosis progresses from the early stages to more disabling periods, your role as a caregiver will likely change. Knowing what types of responsibilities you and your family might have to deal with can help you prepare.

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